Hello!

My name is Rozália Arany-Kovács, this is my story: I spent the first 6 years of my life in a children’s home, so I had no family history for the doctors. This is one of the reasons why it took 39 years to get an accurate diagnosis: I live with mitochondrial myopathy!

I was diagnosed in 2020, at the age of 45 and started my awareness project almost immediately.

MY GOAL IS TO MAKE EVERYONE AWARE OF THE EXISTENCE OF RARE GENETIC DISEASES AND THAT THERE ARE 5 CLINICS IN HUNGARY WHERE THEY CAN BE DIAGNOSED!

In Hungary, about 700,000 people are affected by one of these rare genetic diseases, and only 10% of them are diagnosed. I try to do what I can for the rights and opportunities of the others! I will try to share many of my posts also in English language (although unfortunately I cannot communicate in English).

„This game called ‘life’ can only be played together! Let us look after each other, help each other!”
Rozália

Arany-Kovács ( THE BLUE ROSE) Experienced expert in rare genetic diseases NŐK LAPJA (Women’s magazine) „ROLE MODEL” AWARD-WINNING HEALTH ACTIVIST